Welcome to Ciana’s (“CiCi”) website. She was born October 2006 and has recently been diagnosed with a MICPCH CASK Related Disorder.
We have started this blog for families who may be struggling with the same CASK diagnosis or similar diagnosis, for friends and families who want to follow CiCi’s progress, and for us (her parents) to write and reference what we are going through.
Here is a link to CiCi’s first website when she was born until age 3. http://www.totsites.com/tot/ciana